Thank you for supporting the Miracle Tournament. Donations to Children's Miracle Network Hospitals can be made directly on their site at childrensmiraclenetworkhospitals.org
Donate NowThank you for supporting the Miracle Tournament. The silent auction is now operated by Bidding for Good at biddingforgood.com
Go to AuctionThe 33rd Annual Miracle Tournament, benefiting Children's Miracle Network Hospitals (CMN Hospitals), took place June 24-25, 2024. Thank you to all the golfers, hospital representatives, Champion Children and families who participated.
Sponsored by:
Treated at Nicklaus Children's Hospital in Miami, FL.
After a seemingly healthy pregnancy, Jaxon’s parents were told not to worry by medical providers by a few early signals that something seemed off. Thankfully, his uncle noticed the ridge along Jaxon’s forehead and did not believe the triangular shape of Jaxon’s head was caused by the trauma of delivery. At two weeks old, a CAT scan confirmed Jaxon’s metopic craniosynostosis, where the soft spot at the top of his head had been prematurely fused together in the womb. Jaxon’s parents took him to the renowned Nicklaus Children’s Hospital Brain Institute. At seven months old, Jaxon underwent an eight-hour cranial procedure at Nicklaus Children’s. Despite the challenges, he was in good hands, even combatting other anomalies such as the misalignment of the eyes, a hole in his heart, a horseshoe-shaped kidney, and more. Given the range of birth defects their son faced, Jaxon’s parents’ genetics testing at Nicklaus Children’s confirmed that he had a rare gene mutation in CDK13. There wasn’t much known about CDK13 at the time. Today, nearly 300 cases have been identified globally. For now, Jaxon’s parents treat each symptom as it arises. He struggles with tasks requiring the use of his hands and motor skills, and his ADHD and moderate autism made everyday life and academic tasks challenging. And yet, he continues to make remarkable progress in physical therapy, occupational therapy, and speech therapy. Jaxon’s resilience and carefree, fun personality positively inspires all the lives he touches.
Donations to Children’s Miracle Network Hospitals support the clinical institutes and personalized care that allow Jaxon to make remarkable progress on his journey.
Sponsored by:
Treated at UF Health Jacksonville, Wolfson Children's Hospital in Jacksonville, FL.
While Nathaniel was in utero, several doctors diagnosed him with severe hydrocephalus, heart conditions, and informed his parents he had suffered a stroke. Born at 39 weeks gestation, Nathaniel was the biggest baby in the neonatal intensive care unit. He underwent multiple surgeries over several years and he still faces daily struggles including severe eating, colon, sight, and speech issues. Nathaniel also has cerebral palsy, mitochondria syndrome, and tick disorder. Even with his challenges, Nathaniel remains positive. Today, Nathaniel is ten years old and loves LEGOs and traveling to see family in Germany.
Donations to Children’s Miracle Network Hospitals has helped provide many resources like a special shunt for Nathaniel that makes his daily life easier to manage.
Sponsored by:
Treated at Ann & Robert H. Lurie Children's Hospital of Chicago in Chicago, IL.
When Aidan was seven years old, his parents began to worry as they noticed changes in his energy levels, and regular activities like family bike rides became more and more tiring for him. At his annual doctor’s appointment, his doctor noted that he had grown just one inch in the last year, and after running some tests, his parents turned to Ann & Robert H. Lurie Children’s Hospital of Chicago. Aidan was diagnosed with polycystic kidney disease. Aidan and his parents met with members of the pediatric nephrology team, who helped Aidan understand his condition in an age-appropriate way and included him in conversations at each appointment. Aidan’s condition progressed quickly, and five months later, Aidan went on the transplant list. After confirming that she was a match, his mom made the selfless decision to donate one of her kidneys to Aidan, and they underwent surgery four months later. Through this process, Aidan found comfort through the Lurie Children’s PeerWISE program, which connects current patients with patients who were once in their shoes. Since his kidney transplant, Aidan has continued growing and meeting his milestones. He enjoys playing golf and video games and loves reading and recommending books to his family members.
Thanks to donations to Children’s Miracle Network Hospitals, Aidan received a lifesaving kidney transplant from Ann & Robert H. Lurie Children’s Hospital of Chicago.