33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Johns Hopkins All Children’s Hospital in St. Petersburg, FL.

You would never know by looking at Gavin that he spent the first five years of his life battling debilitating ailments and undergoing countless treatments for an undiagnosed disease. Gavin was just three months old when he started experiencing persistent high fevers, rashes, vomiting, and blood in his intestinal tract. Early tests confirmed elevated liver enzymes and inflammatory markers in his blood. Gavin received treatment for his symptoms, but nothing seemed to cure the cause. When he was just two years old, Gavin had surgery for his kidneys at Johns Hopkins All Children’s Hospital. The surgery was successful, but Gavin continued to suffer from his ailments. For the next three years, Gavin endured several colonoscopies, biopsies, and MRIs without a definite diagnosis. At five years old, after discovering ulcers throughout Gavin’s intestinal tract, he was diagnosed with Crohn’s disease- an inflammatory bowel disease that causes chronic inflammation in the intestinal tract. Crohn’s disease is rare in young children and often undetectable. Today, he receives IV infusion treatments every four weeks and is living a much healthier life. Gavin is an 12-year-old who loves all things golf-related, riding roller coasters, swimming, reading, and has a zest for life.

Thanks to the support of Children’s Miracle Network Hospitals, Gavin received a diagnosis and receives ongoing infusion treatment help improve his quality of life.

Treated at Children's Specialized Hospital in Mountainside, New Jersey.

Thirteen-year-old Gabriella (Gabby) was running at track practice when suddenly she felt her left arm drop on her last lap. After she lost feeling in her arm, she quickly lost sensation in her left leg and fell to the ground. Gabby was rushed to the pediatric unit of a local trauma center. The hospital immediately took her for a CAT scan, which revealed a brain bleed. After several tests, the doctors diagnosed Gabby with a rare brain arteriovenous malformation (AVM) rupture in her right frontal lobe.

She had to wait 10 days for a craniotomy to remove the AVM because they needed the blood to settle in her brain. A few days after surgery, Gabby was transferred to Children’s Specialized Hospital (CSH) for inpatient therapy. AVMs cause stroke-like symptoms, in Gabby’s case, paralysis of the left side of her body and facial weakness. For 19 days in a pediatric intensive care unit, Gabby couldn’t move or sit up. During the five weeks she spent at CSH, Gabby received physical, occupational, speech, and recreational therapies, including aquatic therapy and targeted ways to help her walk again and smile symmetrically. Gabby arrived wheelchair-bound and successfully walked out of CSH on her own. Since then, started practicing soccer and lacrosse again.

Donations to Children’s Miracle Network Hospitals helped Gabby benefit from various forms of therapies that supported her road to recovery.

Treated at Nationwide Children’s Hospital in Toledo, OH.

Two weeks before Myla’s sixth birthday she was diagnosed with acute lymphoblastic leukemia. Myla’s diagnoses came during the COVID-19 pandemic, therefore, Myla’s dad had to wait out in the van while they remained in the emergency room. It was through a video call that he heard the words “your child has cancer.” Myla initially spent ten days in the hospital where she had surgery to have her port placed, receive her first few rounds of chemotherapy, and many blood transfusions. After her release from the hospital, Myla began experiencing severe neuropathy. She had difficulty walking, using her hands, and her vocal cords were becoming paralyzed. Myla tested positive for Charcot-Marie-Tooth disease (CMT). Two weeks later, she was sent home with many mobility and occupational therapy devices to help her regain her independence.

Today, Myla is nine and has returned to things she loved to do before her diagnosis- like riding a bike, doing ballet, and going to school. Myla keeps a smile on her face and takes things one day at a time!

Thanks to donations to Children’s Miracle Network Hospitals, Myla had access to the therapies, specialists, and equipment that helped her overcome leukemia and get back to all her favorite activities.