33^rd Annual Miracle Tournament and Celebration Dinner

Treated at OHSU Doernbecher Children's Hospital in Portland, OR.

Ages 12 & 10

Madison (Maddie) has only known life with cystic fibrosis. A few days after she was born, she was transferred to OHSU Doernbecher Children’s Hospital for a bowel obstruction. After undergoing the procedure, she stayed in the neonatal intensive care unit (NICU) for 30 days. Two years later, Maddie’s little brother, Max, was also diagnosed with a bowel obstruction. His parents knew to go to the NICU at Doernbecher where his sister received care. Max’s severe bowel obstruction and jejunoileal atresia led to his diagnosis of cystic fibrosis too. As Maddie grew up, her condition began affecting her liver, and when she was 10, she was diagnosed with CF-associated liver disease. While their parents wouldn’t wish the diagnosis on either of their children, they see how Maddie and Max support each other on their shared health journeys. Maddie, now 12, loves art, playing golf and wants to be a veterinarian. 10-year-old Max is an all-star baseball player and his favorite position is shortstop. Maddie and Max continue to lean on one another as they manage their condition and are each other’s biggest cheerleaders.

Thanks to the support of Children’s Miracle Network Hospitals, Maddie and Max received quality care during their stay in the NICU at OHSU Doernbecher Children’s Hospital.

Treated at Ann & Robert H. Lurie Children's Hospital of Chicago in Chicago, IL.

When Aidan was seven years old, his parents began to worry as they noticed changes in his energy levels, and regular activities like family bike rides became more and more tiring for him. At his annual doctor’s appointment, his doctor noted that he had grown just one inch in the last year, and after running some tests, his parents turned to Ann & Robert H. Lurie Children’s Hospital of Chicago. Aidan was diagnosed with polycystic kidney disease. Aidan and his parents met with members of the pediatric nephrology team, who helped Aidan understand his condition in an age-appropriate way and included him in conversations at each appointment. Aidan’s condition progressed quickly, and five months later, Aidan went on the transplant list. After confirming that she was a match, his mom made the selfless decision to donate one of her kidneys to Aidan, and they underwent surgery four months later. Through this process, Aidan found comfort through the Lurie Children’s PeerWISE program, which connects current patients with patients who were once in their shoes. Since his kidney transplant, Aidan has continued growing and meeting his milestones. He enjoys playing golf and video games and loves reading and recommending books to his family members.

Thanks to donations to Children’s Miracle Network Hospitals, Aidan received a lifesaving kidney transplant from Ann & Robert H. Lurie Children’s Hospital of Chicago.

Treated at Maria Fareri Children's Hospital in Hudson Valley, NY.

Camryn was diagnosed with Sickle Cell disease three weeks after birth. For most of her life, her disease had been managed. Four years ago, Camryn was diagnosed with Moyamoya disease (a narrowing of blood vessels in the brain). Her sickled blood cells would only complicate this condition. Camryn was in need of a stem cell transplant and her oldest sister, Skylar, was selected as her donor. Camryn was admitted to Maria Fareri Children’s Hospital and Skylar’s stem cells were harvested and transplanted into Camryn. It was inspiring for her family to witness this life-saving exchange among sisters! Camryn was hospitalized for 88 days and she found solace in the extraordinary care, and encouragement she received before, during and after her transplant. Today Camryn is feeling great and is an incredible advocate for the care she received at Maria Fareri Children’s Hospital.

Thanks to donations to Children’s Miracle Network Hospitals, Camryn received care and support as she underwent a stem cell transplant at Maria Fareri Children’s Hospital.