33^rd Annual Miracle Tournament and Celebration Dinner

Treated at St. Rose Dominican Hospital in Las Vegas, NV.

Sixteen years ago, Colbie and Kenna’s parents were excitedly expecting their first children, twin girls. Everything was routine until their mother noticed some discomfort and headed to the hospital. Staff at St. Rose Dominican Hospital quickly determined that something wasn’t right. At 23 weeks and 3 days pregnant, she was slowly leaking amniotic fluid. After doing everything medically possible to delay the birth, the girls were born 15 weeks early. Colbie weighed just 1lb 6oz and Kenna weighed 1lb 5oz. The girls were in the neonatal intensive care unit for 113 days. They each faced their own struggles and were still on oxygen, but one week after their original due date, they were finally able to go home. They continued to grow and develop without any major delays. Today the girls are doing better than ever. Kenna plays competitive soccer and is on the varsity track team. Colbie is part of the National Honors Society and plays the electric guitar. Both girls volunteer for the Unified Special Olympics through their school district.

Thanks to donations to Children’s Miracle Network Hospitals, Colbie and Kenna had access to lifesaving care in the neonatal intensive care unit after being born 15 weeks prematurely.

Treated at Ann & Robert H. Lurie Children's Hospital of Chicago in Chicago, IL.

When Aidan was seven years old, his parents began to worry as they noticed changes in his energy levels, and regular activities like family bike rides became more and more tiring for him. At his annual doctor’s appointment, his doctor noted that he had grown just one inch in the last year, and after running some tests, his parents turned to Ann & Robert H. Lurie Children’s Hospital of Chicago. Aidan was diagnosed with polycystic kidney disease. Aidan and his parents met with members of the pediatric nephrology team, who helped Aidan understand his condition in an age-appropriate way and included him in conversations at each appointment. Aidan’s condition progressed quickly, and five months later, Aidan went on the transplant list. After confirming that she was a match, his mom made the selfless decision to donate one of her kidneys to Aidan, and they underwent surgery four months later. Through this process, Aidan found comfort through the Lurie Children’s PeerWISE program, which connects current patients with patients who were once in their shoes. Since his kidney transplant, Aidan has continued growing and meeting his milestones. He enjoys playing golf and video games and loves reading and recommending books to his family members.

Thanks to donations to Children’s Miracle Network Hospitals, Aidan received a lifesaving kidney transplant from Ann & Robert H. Lurie Children’s Hospital of Chicago.

Treated at Children's Health Foundation in Oklahoma City, OK.

At a routine 18-week ultrasound, Connor was diagnosed with the most severe form of spina bifida and hydrocephalus. His family met with the neurosurgery team at Oklahoma Children’s Hospital in Oklahoma City to learn how to prepare for Connor’s care after birth. He was born at 36 weeks and was immediately taken to the neonatal intensive care unit (NICU), where he stayed for 10 days. His first surgery was at two days old to close the hole in his back to protect his exposed spinal cord. Then, three days later he had brain surgery to place a shunt to drain the fluid in his brain (hydrocephalus). Just before he turned two, he began having long, life-threatening seizures. The seizures have caused Connor to have speech and cognitive delays. Connor receives occupational, physical and speech therapies to help with his development. Over the last 12 years, Connor has had 26 surgeries. Connor has paralysis in his lower half and has required multiple orthopedic surgeries in the last few years to correct his scoliosis, hip dysplasia, and some broken bones caused by low bone density. He loves watching sports, swimming, and watching his big sister dance. He enjoys playing adaptive baseball and attending Wheelie Club, an all-abilities club of varying activities.

Donations to Children’s Miracle Network Hospitals helped Connor receive life-saving care in the NICU and through his numerous surgeries.