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Treated at Ann & Robert H. Lurie Children's Hospital of Chicago in Chicago, IL.
When Aidan was seven years old, his parents began to worry as they noticed changes in his energy levels, and regular activities like family bike rides became more and more tiring for him. At his annual doctor’s appointment, his doctor noted that he had grown just one inch in the last year, and after running some tests, his parents turned to Ann & Robert H. Lurie Children’s Hospital of Chicago. Aidan was diagnosed with polycystic kidney disease. Aidan and his parents met with members of the pediatric nephrology team, who helped Aidan understand his condition in an age-appropriate way and included him in conversations at each appointment. Aidan’s condition progressed quickly, and five months later, Aidan went on the transplant list. After confirming that she was a match, his mom made the selfless decision to donate one of her kidneys to Aidan, and they underwent surgery four months later. Through this process, Aidan found comfort through the Lurie Children’s PeerWISE program, which connects current patients with patients who were once in their shoes. Since his kidney transplant, Aidan has continued growing and meeting his milestones. He enjoys playing golf and video games and loves reading and recommending books to his family members.
Thanks to donations to Children’s Miracle Network Hospitals, Aidan received a lifesaving kidney transplant from Ann & Robert H. Lurie Children’s Hospital of Chicago.
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Treated at Baylor Scott & White McLane Children's Medical Center in Waco, TX.
Identical twins Audrey and Ella were born nine weeks premature, and each weighed two pounds. They spent several weeks in the neonatal intensive care unit at Baylor Scott & White McLane Children’s Hospital. Despite their early arrival, the twins were healthy, and their early interventions were very minimal. However, when they were one year old, a routine doctor’s visit led to a referral to a plastic surgeon at McLane’s Children’s Hospital who found both of their skulls were developing in a triangular shape. This condition, Metopic Craniosynostosis, happens when the bone plates that make up the skull fuse too early and can lead to vision, learning and behavioral issues. Audrey and Ella required a Cranial Vault reconstruction/reconstructive surgery at 17 months old. After their ten-hour procedure, the doctors confirmed that they did not need any additional surgery. Today, the twins are six-years old and are growing and thriving. With their scars hidden beneath their hairline, you would never know of their condition.
Donations to Children’s Miracle Network Hospitals helped to purchase the equipment used for Audrey and Ella’s Craniosynostosis Cranial Vault reconstruction/reconstructive surgery.
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Treated at UNM Children’s Hospital in Albuquerque, NM.
Natalie’s cancer journey began at the age of ten when her mom noticed her daughter’s visual impairment. She was diagnosed with an Optic Pathway Glioma, a type of cancer that is difficult to treat and can also affect the pituitary gland. After two chemotherapy sessions, the tumor had completely disappeared, and her family rejoiced. She continued chemotherapy for another year as neurologists monitored Natalie.
A few months later, an MRI identified an area of concern and a biopsy confirmed Anaplastic Astrocytoma, a different, more aggressive brain tumor. She immediately and courageously began treatment again, including 30 rounds of proton therapy radiation and 42 rounds of oral chemotherapy.
Although her treatment worked, she was left with hemiparesis, the weakness of her right side weakness, which required two years in physical and occupational therapy. Recently, an MRI detected a new area of concern, this time, in Natalie’s brain stem. To get a biopsy, Natalie needed major surgery to access the tumor through her cerebellum. Doctors found a Germinoma tumor and her family was relieved to learn that the condition is very treatable. Now, Natalie is bravely facing months of chemotherapy again at UNM Children’s Hospital.
Donations to Children’s Miracle Network Hospitals benefited Natalie’s highly tailored care throughout her journey.