33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Carilion Children's in Roanoke, VA.

Ten-year-old Meg has a rare genetic condition called CTBP, and scoliosis. At the age of nine, Meg had a full spinal fusion once her curve hit 101 degrees, a surgery that saved her life. Thanks to her care team at Carilion Children’s, Meg has access to all the therapies, doctors, and equipment she needs close to home. Meg loves babies, puppies, her American Girl Dolls, and playing with her big sisters!

Thanks to donations to Children’s Miracle Network Hospitals, Meg has access to world-class doctors and surgeons treating her genetic condition and scoliosis at Carilion Children’s Hospital.

Treated at Boston Children’s Hospital in Boston, MA.

The joy of Kennedy’s birth changed to fear when she stopped feeding and her oxygen levels dropped. After six weeks with no answers at a local hospital, Kennedy’s parents drove 90 minutes to Boston Children’s Hospital, where extensive testing revealed Kennedy had a rare condition where her weak trachea could collapse to block the airway, making it hard to breathe. Her doctor explained that Kennedy needed a tracheotomy to keep her airway stable. After 136 days at Boston Children’s, nine-month-old Kennedy was able to go home. The care team helped the family understand how to access benefits for children with complex medical needs, including the care of an at-home nurse. Six years later, Kennedy visits Boston Children’s for check-ups and is making great progress, working toward being able to walk on her own. Kennedy is a proud big sister and loves music and seeing her friends at school.

Donations to Children’s Miracle Network Hospitals supported Kennedy over her 136 days of care with Child Life Specialists, music therapy, and visits from therapy dogs.

Treated at West Virginia University Children’s in Morgantown, WV.

Addison was eight years old when she had a rapid onset of seizures, which were misdiagnosed as panic attacks. Doctors encouraged her family to take their already scheduled vacation, but after arriving in South Carolina, her episodes increased in intensity and frequency. When her mom took her to the nearest emergency department, she was told it would be a thirteen-hour wait. Addison’s eyes were dilated and her hands and legs were shaking; her mother wondered if her daughter was having seizures and pleaded for a doctor to admit her daughter. After countless tests and doctors’ visits, neurologists diagnosed her with cortical dysplasia to the frontal lobe, which is a congenital abnormality of brain development that can cause irretractable epilepsy. Addison underwent a craniotomy with right frontal lobe resection and a few weeks later, she needed a spinal tap to drain the excess fluid from her brain due to a cerebrospinal fluid leak. Today, although on medication and still having seizures, Addison exudes strength and wisdom far beyond her years. When she grows up, Addison wants to become a Child Life specialist.

Donations to Children’s Miracle Network Hospitals provides life-saving care and essential programs that support Addison and her family during her treatments.