33^rd Annual Miracle Tournament and Celebration Dinner

Treated at UPMC Children’s Hospital of Pittsburgh in Pittsburgh, PA.

Isabelle (Belle) was adopted from China when she was 19 months old. Her parents knew she had a potentially devastating blood disorder called thalassemia, but they were comforted that a top ten children’s hospital would be waiting for them when they got home. Doctors at UPMC Children’s Hospital of Pittsburgh began treatment right away. Since she had beta thalassemia major, the most severe form of thalassemia, Belle had a mediport placed and began a routine of ongoing blood transfusions. To mitigate the risk of an iron overload, which could affect her liver and heart, she takes two medications every morning and every evening. Today, Belle is a happy 12-year-old who loves her hospital days because she gets to bring her two favorite stuffed animals, play Uno, and do arts and crafts with her favorite Child Life specialists. She loves having sushi for lunch in the hospital cafeteria. Belle is a cheerleader and a runner. She has joined band and choir at school.

On the days Belle returns to the hospital, the services provided through Children’s Miracle Network Hospitals help her spend time creatively.

Treated at West Virginia University Children’s in Morgantown, WV.

Addison was eight years old when she had a rapid onset of seizures, which were misdiagnosed as panic attacks. Doctors encouraged her family to take their already scheduled vacation, but after arriving in South Carolina, her episodes increased in intensity and frequency. When her mom took her to the nearest emergency department, she was told it would be a thirteen-hour wait. Addison’s eyes were dilated and her hands and legs were shaking; her mother wondered if her daughter was having seizures and pleaded for a doctor to admit her daughter. After countless tests and doctors’ visits, neurologists diagnosed her with cortical dysplasia to the frontal lobe, which is a congenital abnormality of brain development that can cause irretractable epilepsy. Addison underwent a craniotomy with right frontal lobe resection and a few weeks later, she needed a spinal tap to drain the excess fluid from her brain due to a cerebrospinal fluid leak. Today, although on medication and still having seizures, Addison exudes strength and wisdom far beyond her years. When she grows up, Addison wants to become a Child Life specialist.

Donations to Children’s Miracle Network Hospitals provides life-saving care and essential programs that support Addison and her family during her treatments.

Treated at Carilion Children's in Roanoke, VA.

Ten-year-old Meg has a rare genetic condition called CTBP, and scoliosis. At the age of nine, Meg had a full spinal fusion once her curve hit 101 degrees, a surgery that saved her life. Thanks to her care team at Carilion Children’s, Meg has access to all the therapies, doctors, and equipment she needs close to home. Meg loves babies, puppies, her American Girl Dolls, and playing with her big sisters!

Thanks to donations to Children’s Miracle Network Hospitals, Meg has access to world-class doctors and surgeons treating her genetic condition and scoliosis at Carilion Children’s Hospital.