33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Baylor Scott & White McLane Children's Medical Center in Waco, TX.

Identical twins Audrey and Ella were born nine weeks premature, and each weighed two pounds. They spent several weeks in the neonatal intensive care unit at Baylor Scott & White McLane Children’s Hospital. Despite their early arrival, the twins were healthy, and their early interventions were very minimal. However, when they were one year old, a routine doctor’s visit led to a referral to a plastic surgeon at McLane’s Children’s Hospital who found both of their skulls were developing in a triangular shape. This condition, Metopic Craniosynostosis, happens when the bone plates that make up the skull fuse too early and can lead to vision, learning and behavioral issues. Audrey and Ella required a Cranial Vault reconstruction/reconstructive surgery at 17 months old. After their ten-hour procedure, the doctors confirmed that they did not need any additional surgery. Today, the twins are six-years old and are growing and thriving. With their scars hidden beneath their hairline, you would never know of their condition.

Donations to Children’s Miracle Network Hospitals helped to purchase the equipment used for Audrey and Ella’s Craniosynostosis Cranial Vault reconstruction/reconstructive surgery.

Treated at Kentucky Children’s Hospital in Lexington, KY.

At ?rst, eight-year-old Lucy’s parents thought she’d caught strep throat, or maybe the ?u. But as her symptoms progressed to a high fever and an upset stomach over the course of the week, they realized their daughter was dealing with something worse. Lucy’s pediatrician tested her for something called Multisystem In?ammatory Syndrome in Children, or MIS-C: a rare syndrome associated with COVID. “We were just ruling it out” was the mindset behind running blood work that led to Lucy’s diagnosis. “[Our pediatrician] said, ‘We’ve already called ahead to Kentucky Children’s Hospital, and they have a room for you. You need to go immediately.’” MIS-C can lead to major in?ammation of the organ systems, skin, and brain, and most children with the condition arrive at the hospital in bad shape. When Lucy was admitted, her blood pressure was low and her heart was beating way too fast. Lucy’s doctors and her parents quickly made the decision to transfer her to Kentucky Children’s Hospital’s pediatric intensive care unit (PICU). After several days in the PICU, Lucy’s condition began to improve. Soon she was discharged to recover fully at home. Lucy’s family is deeply grateful to the medical professionals at Kentucky Children’s Hospital for ensuring their story has a happy, healthy ending.

Thanks to donations to Children’s Miracle Network Hospitals, Lucy had access to lifesaving care at Kentucky Children’s as she recovered from MIS-C.

Treated at OHSU Doernbecher Children's Hospital in Portland, OR.

Ages 12 & 10

Madison (Maddie) has only known life with cystic fibrosis. A few days after she was born, she was transferred to OHSU Doernbecher Children’s Hospital for a bowel obstruction. After undergoing the procedure, she stayed in the neonatal intensive care unit (NICU) for 30 days. Two years later, Maddie’s little brother, Max, was also diagnosed with a bowel obstruction. His parents knew to go to the NICU at Doernbecher where his sister received care. Max’s severe bowel obstruction and jejunoileal atresia led to his diagnosis of cystic fibrosis too. As Maddie grew up, her condition began affecting her liver, and when she was 10, she was diagnosed with CF-associated liver disease. While their parents wouldn’t wish the diagnosis on either of their children, they see how Maddie and Max support each other on their shared health journeys. Maddie, now 12, loves art, playing golf and wants to be a veterinarian. 10-year-old Max is an all-star baseball player and his favorite position is shortstop. Maddie and Max continue to lean on one another as they manage their condition and are each other’s biggest cheerleaders.

Thanks to the support of Children’s Miracle Network Hospitals, Maddie and Max received quality care during their stay in the NICU at OHSU Doernbecher Children’s Hospital.