33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Kentucky Children’s Hospital in Lexington, KY.

At ?rst, eight-year-old Lucy’s parents thought she’d caught strep throat, or maybe the ?u. But as her symptoms progressed to a high fever and an upset stomach over the course of the week, they realized their daughter was dealing with something worse. Lucy’s pediatrician tested her for something called Multisystem In?ammatory Syndrome in Children, or MIS-C: a rare syndrome associated with COVID. “We were just ruling it out” was the mindset behind running blood work that led to Lucy’s diagnosis. “[Our pediatrician] said, ‘We’ve already called ahead to Kentucky Children’s Hospital, and they have a room for you. You need to go immediately.’” MIS-C can lead to major in?ammation of the organ systems, skin, and brain, and most children with the condition arrive at the hospital in bad shape. When Lucy was admitted, her blood pressure was low and her heart was beating way too fast. Lucy’s doctors and her parents quickly made the decision to transfer her to Kentucky Children’s Hospital’s pediatric intensive care unit (PICU). After several days in the PICU, Lucy’s condition began to improve. Soon she was discharged to recover fully at home. Lucy’s family is deeply grateful to the medical professionals at Kentucky Children’s Hospital for ensuring their story has a happy, healthy ending.

Thanks to donations to Children’s Miracle Network Hospitals, Lucy had access to lifesaving care at Kentucky Children’s as she recovered from MIS-C.

Treated at Johns Hopkins All Children’s Hospital in St. Petersburg, FL.

You would never know by looking at Gavin that he spent the first five years of his life battling debilitating ailments and undergoing countless treatments for an undiagnosed disease. Gavin was just three months old when he started experiencing persistent high fevers, rashes, vomiting, and blood in his intestinal tract. Early tests confirmed elevated liver enzymes and inflammatory markers in his blood. Gavin received treatment for his symptoms, but nothing seemed to cure the cause. When he was just two years old, Gavin had surgery for his kidneys at Johns Hopkins All Children’s Hospital. The surgery was successful, but Gavin continued to suffer from his ailments. For the next three years, Gavin endured several colonoscopies, biopsies, and MRIs without a definite diagnosis. At five years old, after discovering ulcers throughout Gavin’s intestinal tract, he was diagnosed with Crohn’s disease- an inflammatory bowel disease that causes chronic inflammation in the intestinal tract. Crohn’s disease is rare in young children and often undetectable. Today, he receives IV infusion treatments every four weeks and is living a much healthier life. Gavin is an 12-year-old who loves all things golf-related, riding roller coasters, swimming, reading, and has a zest for life.

Thanks to the support of Children’s Miracle Network Hospitals, Gavin received a diagnosis and receives ongoing infusion treatment help improve his quality of life.

Treated at Maria Fareri Children's Hospital in Hudson Valley, NY.

Camryn was diagnosed with Sickle Cell disease three weeks after birth. For most of her life, her disease had been managed. Four years ago, Camryn was diagnosed with Moyamoya disease (a narrowing of blood vessels in the brain). Her sickled blood cells would only complicate this condition. Camryn was in need of a stem cell transplant and her oldest sister, Skylar, was selected as her donor. Camryn was admitted to Maria Fareri Children’s Hospital and Skylar’s stem cells were harvested and transplanted into Camryn. It was inspiring for her family to witness this life-saving exchange among sisters! Camryn was hospitalized for 88 days and she found solace in the extraordinary care, and encouragement she received before, during and after her transplant. Today Camryn is feeling great and is an incredible advocate for the care she received at Maria Fareri Children’s Hospital.

Thanks to donations to Children’s Miracle Network Hospitals, Camryn received care and support as she underwent a stem cell transplant at Maria Fareri Children’s Hospital.