33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Orlando Health Arnold Palmer Hospital for Children in Orlando, FL.

During their 20-week ultrasound, Akosua and Fernando learned that their baby had spina bifida. Determined to explore all options, they reached out to the Fetal Care Center at Orlando Health Winnie Palmer Hospital for Women and Babies after learning the hospital offered in-utero surgery for babies with this diagnosis. Within a week, Akosua started an evaluation to see if she and her baby were suitable for in-utero surgery, and thankfully, they were. At 25 weeks into her pregnancy, Akosua underwent surgery to correct the defect in Celeste’s spine. Seven weeks later, Celeste was born, weighing 4 pounds, 10 ounces. After a short stay in the neonatal intensive care unit to ensure her health, she was able to go home. Now, at five years old, Celeste is thriving. She walks on her own and enjoys gymnastics, swimming and playing with her sister. Celeste is smart, playful, determined and kind. Celeste goes to weekly physical therapy, and as she grows, she will continue to receive care at the Spina Bifida Clinic at Orlando Health Arnold Palmer Hospital for Children.

Donations to Children’s Miracle Network Hospitals helped fund the fetal surgery program and the state-of-the-art ultrasound machine used to detect spina bifida in kids like Celeste.

Treated at University of Michigan Health at Sparrow Children's Center in Lansing, MI.

At 17 weeks pregnant, Ryan’s mom, Becky, was diagnosed with a subchorionic hematoma. Soon after, Becky was placed on bedrest for 6 weeks until Ryan was born via an emergency C-section at 23 weeks.

Ryan weighed one pound seven ounces at birth. In the University of Michigan Health at Sparrow Children’s Center’s Regional Neonatal Intensive Care Unit (RNICU), he was supported by a team of neonatologists, nurse practitioners, nurses, respiratory therapists, phlebotomists, and many others. Ryan’s time in the NICU was marked by underdeveloped lungs and bronchopulmonary dysplasia, multiple infections, intraventricular hemorrhages, necrotizing enterocolitis, and advanced retinopathy of prematurity.

After discharge, Ryan required regular follow-up appointments with many subspecialists, therapists, medical equipment providers, and others. He was readmitted that first year into the pediatric intensive care unit for breathing difficulties, and additional surgery.

Today, Ryan is a 14-year-old who exemplifies perseverance. He loves to build things, ride his bike and hoverboard, and play in the band!

Thanks to donations to Children’s Miracle Network Hospitals, Ryan had access to a team of lifesaving specialists in the neonatal intensive care unit after being 17 weeks prematurely.

Treated at Hasbro Children's Hospital in Providence, RI/New Bedford, MA.

At 18 weeks gestation, London’s parents wanted to find out their baby’s gender. A high-level ultrasound soon confirmed that their baby was a girl--and that she would be born with spina bifida. Her parents did everything they could to learn about the diagnosis in preparation. Dr. Petra Klinge, a neurosurgeon at Hasbro Children’s Hospital, not only reassured them, but she also gave them hope. The day after London was born, Dr. Klinge performed an intricate eight-hour surgery to close the skin and spinal cord on the tiny newborn’s spine. When London was still not walking at 18 months, early intervention specialists advised her parents to consider leg braces and a walker, but instead they turned to Hasbro’s Pediatric Rehabilitation team and continued physical therapy. Just after turning two years old, London got up and walked across the room for the first time on her own. Now nine years old, London loves to dance and play soccer, and she is training for a Black Belt. She continues to amaze everyone with her vibrant smile and personality.

Donations to Children’s Miracle Network Hospitals helped London get the support of her local pediatric rehabilitation program.