Fore!

Treated at Texas Children's Hospital in Houston, TX.

Kylea was born prematurely at 34 weeks in Kansas, and she tested positive for cystic fibrosis (CF). Her medical team thought it was a false positive since she had no symptoms. Months later, Kylea was still under five pounds. Her mom took her to the emergency center at a nearby children’s hospital in Missouri, where Kylea was admitted for jaundice. After a liver biopsy and other tests, including blood tests to look for the genetic mutations that cause CF, the family got confirmation: Kylea had two copies of delta F508, the most common genetic mutation that causes cystic fibrosis. Once she had an official diagnosis, Kylea’s family turned to Texas Children’s Hospital since they were ranked number one in pulmonology and offered a holistic approach to care. Her family moved to Houston, just in time for the new school year. Her childhood was filled to the brim with sports, dance, gymnastics, Girl Scouts, swimming, science camp, and trips to the zoo.

Today, she is 15 and studying French. She hopes to travel the world and study forensic psychology in college.

Thanks to donations to Children’s Miracle Network Hospitals, Kylea had access to world-class, holistic pulmonology care for cystic fibrosis.

Treated at University of Michigan Health at Sparrow Children's Center in Lansing, MI.

At 17 weeks pregnant, Ryan’s mom, Becky, was diagnosed with a subchorionic hematoma. Soon after, Becky was placed on bedrest for 6 weeks until Ryan was born via an emergency C-section at 23 weeks.

Ryan weighed one pound seven ounces at birth. In the University of Michigan Health at Sparrow Children’s Center’s Regional Neonatal Intensive Care Unit (RNICU), he was supported by a team of neonatologists, nurse practitioners, nurses, respiratory therapists, phlebotomists, and many others. Ryan’s time in the NICU was marked by underdeveloped lungs and bronchopulmonary dysplasia, multiple infections, intraventricular hemorrhages, necrotizing enterocolitis, and advanced retinopathy of prematurity.

After discharge, Ryan required regular follow-up appointments with many subspecialists, therapists, medical equipment providers, and others. He was readmitted that first year into the pediatric intensive care unit for breathing difficulties, and additional surgery.

Today, Ryan is a 14-year-old who exemplifies perseverance. He loves to build things, ride his bike and hoverboard, and play in the band!

Thanks to donations to Children’s Miracle Network Hospitals, Ryan had access to a team of lifesaving specialists in the neonatal intensive care unit after being 17 weeks prematurely.

Treated at Dayton Children’s Hospital in Dayton, OH.

At the age of three, Carah was diagnosed with childhood-onset fluency disorder (also known as stuttering). While most children outgrow a stutter by the age of 5, Carah did not. In 6th grade, a substitute teacher mocked her in class, leaving Carah spiraling with her self-esteem and confidence plummeting. She mentally and emotionally struggled and didn’t want to go to school. Carah saw countless speech therapists over the years but never felt there was a right fit as the focus was placed on her speech fluency and less on the deep, lingering emotional trauma she was experiencing. That changed when Carah turned to Dayton Children’s Speech Therapy Program. “...from the time we walked through those speech therapy doors, they took the time to actually talk with Carah and dug deeper to the parts that people can’t see. And helped Carah in learning tools and techniques to navigate those feelings and mental roadblocks,” her mom said. Carah will always have a stutter; however, she’s learned that her condition does not steal the power of her own voice. One way she’s doing that is by educating her former middle school by giving a keynote speech every year, now part of her school’s curriculum, about stuttering, understanding yourself and your feelings, and bullying. “Stuttering is a part of me, but it doesn’t define me. I have a lot of goals set for the future and I’m just getting started,” Carah said.

Thanks to donations to Children’s Miracle Network Hospitals, Carah received life-changing support from Dayton Children’s Speech Therapy Program, helping her self-esteem grow as she navigates Child Onset Fluency Disorder.