33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Boston Children’s Hospital in Boston, MA.

The joy of Kennedy’s birth changed to fear when she stopped feeding and her oxygen levels dropped. After six weeks with no answers at a local hospital, Kennedy’s parents drove 90 minutes to Boston Children’s Hospital, where extensive testing revealed Kennedy had a rare condition where her weak trachea could collapse to block the airway, making it hard to breathe. Her doctor explained that Kennedy needed a tracheotomy to keep her airway stable. After 136 days at Boston Children’s, nine-month-old Kennedy was able to go home. The care team helped the family understand how to access benefits for children with complex medical needs, including the care of an at-home nurse. Six years later, Kennedy visits Boston Children’s for check-ups and is making great progress, working toward being able to walk on her own. Kennedy is a proud big sister and loves music and seeing her friends at school.

Donations to Children’s Miracle Network Hospitals supported Kennedy over her 136 days of care with Child Life Specialists, music therapy, and visits from therapy dogs.

Treated at UF Health Jacksonville, Wolfson Children's Hospital in Jacksonville, FL.

While Nathaniel was in utero, several doctors diagnosed him with severe hydrocephalus, heart conditions, and informed his parents he had suffered a stroke. Born at 39 weeks gestation, Nathaniel was the biggest baby in the neonatal intensive care unit. He underwent multiple surgeries over several years and he still faces daily struggles including severe eating, colon, sight, and speech issues. Nathaniel also has cerebral palsy, mitochondria syndrome, and tick disorder. Even with his challenges, Nathaniel remains positive. Today, Nathaniel is ten years old and loves LEGOs and traveling to see family in Germany.

Donations to Children’s Miracle Network Hospitals has helped provide many resources like a special shunt for Nathaniel that makes his daily life easier to manage.

Treated at Johns Hopkins Children's Center in Baltimore, MD.

Before Emerson (Emme) was born at 25 weeks, she and her twin sister, Elle, were given a 10-15% chance of survival. At Johns Hopkins Children’s Center, Emme had her first brain surgery at 21 days old. She was diagnosed with hydrocephalus, cerebral palsy, and epilepsy, and she recently underwent seven brain surgeries including a right lobe hemispherectomy to help with seizures and motor function. Despite her long, tough journey, Emme continues to conquer every challenge that comes her way. She has found comfort in the music therapy program, where loves singing the Beluga song with her music therapist.

Donations to Children’s Miracle Network Hospitals fund the music therapy program that offers Emme comfort throughout her medical journey.

Elle was born prematurely at 25 weeks gestation, with a brain bleed that caused hydrocephalus, a neurological disorder caused by an abnormal buildup of cerebrospinal fluid in the cavities of her brain. Elle and her twin sister, Emme, were both given a 10-15% chance of survival. Elle spent 106 days in the neonatal intensive care unit (NICU) with her sister. Elle benefited from the power of play by working closely with Child Life specialists and she loved the special NICU teddy bears, the mobiles, and the play pads. Today, Elle loves dancing, playing, and being her sister Emme’s number one supporter.

Donations to Children’s Miracle Network Hospitals supported Elle and her family by generously covering the treatment not covered by insurance.