33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Gillette Children's Specialty Healthcare in St. Paul, MN.

Twelve-year-old ZaLayaa has experienced a variety of sensory and complex medical conditions since she was an infant. Her symptoms have impacted her daily life, and to this day, their underlying cause remains a mystery. Over the years, her family has actively sought answers from doctors, heard different theories, and tried numerous treatments. Once they made it to Gillette Children’s Specialty Healthcare, her mom says “that made a world of difference.” Gillette’s medical team brought a new approach to ZaLayaa’s care. Rather than focusing on solving the puzzle of her diagnosis, her care team addresses the real-life issues ZaLayaa was facing every day. Now, she sees more than 25 different providers at Gillette, receiving comprehensive evaluations with pediatric medicine and rehabilitation specialists, along with numerous physical and occupational therapy appointments. Gillette’s therapeutic recreation specialists have allowed her to enjoy an accessible playground and an adaptive bicycle. She has been waterskiing, run from third base to home plate at a Minnesota Twins game, and impressed fellow golfers with her swing on the course.

The support of Children’s Miracle Network Hospitals has allowed ZaLayaa to reach new milestones on her health journey with innovative complex care teams and Therapeutic Recreation.

Treated at Children's Hospital Colorado in Aurora, CO.

At age 4, Maelle began to complain that her head hurt and her eyes started crossing. Doctors discovered a three-centimeter mass in her brain and immediately sent the family to Children’s Hospital Colorado where Maelle had a biopsy.

Doctors at Children’s Hospital Colorado diagnosed Maelle with a non-cancerous pilocytic astrocytoma. Due to the tumors’ precarious location, it was deemed inoperable. After careful consideration, Maelle’s family and care team decided to shrink the tumor with chemotherapy. After seven months of chemotherapy, the tumor had shrunk significantly, and they were able to cease treatment and return to normal life.

For two years, Maelle enjoyed life outside of the hospital and became an avid volleyball player. But unfortunately, during a routine check-up, doctors discovered that Maelle’s tumor had started growing again. In January of 2021, Maelle began a new experimental treatment to help reduce the growth of the tumor. Maelle continued to remain in the best of spirits and came off the treatment in February of 2023.

Whilst the treatment saw limited success, she has been off all medication since. Maelle continues to visit Children’s Hospital Colorado to monitor the tumors’ progress and is excited to start high school next year! The family has hope in the groundbreaking research being conducted at Children’s Hospital Colorado to find new treatments and therapies for kids like Maelle.

“Words can’t describe what Children’s Colorado means to us,” says her mom, Kristen. “A hospital isn’t a place where most people would choose to be. And yet, I always feel at ease here, knowing that our daughter is getting the best care available. They are nothing short of amazing.”

Thanks to donations to Children’s Miracle Network Hospitals, Maelle benefits from groundbreaking research being conducted by her local member hospital.

Treated at Boston Children’s Hospital in Boston, MA.

The joy of Kennedy’s birth changed to fear when she stopped feeding and her oxygen levels dropped. After six weeks with no answers at a local hospital, Kennedy’s parents drove 90 minutes to Boston Children’s Hospital, where extensive testing revealed Kennedy had a rare condition where her weak trachea could collapse to block the airway, making it hard to breathe. Her doctor explained that Kennedy needed a tracheotomy to keep her airway stable. After 136 days at Boston Children’s, nine-month-old Kennedy was able to go home. The care team helped the family understand how to access benefits for children with complex medical needs, including the care of an at-home nurse. Six years later, Kennedy visits Boston Children’s for check-ups and is making great progress, working toward being able to walk on her own. Kennedy is a proud big sister and loves music and seeing her friends at school.

Donations to Children’s Miracle Network Hospitals supported Kennedy over her 136 days of care with Child Life Specialists, music therapy, and visits from therapy dogs.