33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Valley Children's Hospital in Madera, CA.

Davey Jean was born with a rare genetic disorder called 22q11.2 deletion syndrome (22q) and was faced with many 22q-related anomalies including congenital heart defects, cleft palate, developmental and speech delays, etc. At 30 weeks in utero, she was diagnosed with Tetralogy of Fallot, a compilation of four heart defects, and required open-heart surgery soon after her birth. By the time she was three years old, she was still non-verbal and used American Sign Language to communicate. Her parents learned that she had conductive hearing loss and would need ear surgery to help drain the fluid causing it. Davey Jean also went through two complex surgeries for her Atypical Submucosal Cleft Palate, which made it nearly impossible for her to form sounds and words. The ear, nose, and throat (ENT) department at Valley Children’s, along with the plastic surgery, audiology and speech therapy teams, all joined in an effort to help with Davey Jean’s hearing issues and speech delays. Today, she is able to communicate using words. Now ten years old, Davey Jean has already undergone five surgeries at Valley Children’s. She continues to see multiple specialists at Valley Children’s, as well as physical and occupational therapy. She is very active and enjoys playing with her friends and doing gymnastics. She loves going to the park and playing with her toys and her dog, Tater Tot.

Thanks to support from Children’s Miracle Network Hospitals, Davey Jean has been able to get the surgeries and critical care she needed.

Treated at Nicklaus Children's Hospital in Miami, FL.

After a seemingly healthy pregnancy, Jaxon’s parents were told not to worry by medical providers by a few early signals that something seemed off. Thankfully, his uncle noticed the ridge along Jaxon’s forehead and did not believe the triangular shape of Jaxon’s head was caused by the trauma of delivery. At two weeks old, a CAT scan confirmed Jaxon’s metopic craniosynostosis, where the soft spot at the top of his head had been prematurely fused together in the womb. Jaxon’s parents took him to the renowned Nicklaus Children’s Hospital Brain Institute. At seven months old, Jaxon underwent an eight-hour cranial procedure at Nicklaus Children’s. Despite the challenges, he was in good hands, even combatting other anomalies such as the misalignment of the eyes, a hole in his heart, a horseshoe-shaped kidney, and more. Given the range of birth defects their son faced, Jaxon’s parents’ genetics testing at Nicklaus Children’s confirmed that he had a rare gene mutation in CDK13. There wasn’t much known about CDK13 at the time. Today, nearly 300 cases have been identified globally. For now, Jaxon’s parents treat each symptom as it arises. He struggles with tasks requiring the use of his hands and motor skills, and his ADHD and moderate autism made everyday life and academic tasks challenging. And yet, he continues to make remarkable progress in physical therapy, occupational therapy, and speech therapy. Jaxon’s resilience and carefree, fun personality positively inspires all the lives he touches.

Donations to Children’s Miracle Network Hospitals support the clinical institutes and personalized care that allow Jaxon to make remarkable progress on his journey.

Treated at CHRISTUS Children’s in San Antonio, TX.

Drew was a happy, healthy two-year-old who had never been ill. He never even had an earache before he was diagnosed with pneumonia and admitted into the H-E-B Emergency Department at CHRISTUS Children’s after a very high fever. When pneumonia didn’t improve, he was transferred to the pediatric intensive care unit (PICU) and underwent surgery to clear out his lungs, followed by a blood transfusion the next day. Drew’s vitals dropped extremely low, causing him to go into cardiac arrest. After his second surgery, he was able come off the ventilator, but then his anaphylactic allergic reaction to antibiotics caused another setback. His mother says “the PICU team will always have a special place in our hearts. They gave us the greatest gift: Drew’s life.” Today, Drew has fully recovered. He is a fun-loving, sweet nine-year-old that loves Marvel and LEGOS. He stays busy on the weekends playing football, baseball, and basketball.

Thanks to the support of Children’s Miracle Network Hospitals, Drew benefited from a brand new PICU ventilator to support his complex care and Child Life services for his family.