33^rd Annual Miracle Tournament and Celebration Dinner

Treated at UPMC Children’s Hospital of Pittsburgh in Pittsburgh, PA.

Isabelle (Belle) was adopted from China when she was 19 months old. Her parents knew she had a potentially devastating blood disorder called thalassemia, but they were comforted that a top ten children’s hospital would be waiting for them when they got home. Doctors at UPMC Children’s Hospital of Pittsburgh began treatment right away. Since she had beta thalassemia major, the most severe form of thalassemia, Belle had a mediport placed and began a routine of ongoing blood transfusions. To mitigate the risk of an iron overload, which could affect her liver and heart, she takes two medications every morning and every evening. Today, Belle is a happy 12-year-old who loves her hospital days because she gets to bring her two favorite stuffed animals, play Uno, and do arts and crafts with her favorite Child Life specialists. She loves having sushi for lunch in the hospital cafeteria. Belle is a cheerleader and a runner. She has joined band and choir at school.

On the days Belle returns to the hospital, the services provided through Children’s Miracle Network Hospitals help her spend time creatively.

Treated at Johns Hopkins Children's Center in Baltimore, MD.

Before Emerson (Emme) was born at 25 weeks, she and her twin sister, Elle, were given a 10-15% chance of survival. At Johns Hopkins Children’s Center, Emme had her first brain surgery at 21 days old. She was diagnosed with hydrocephalus, cerebral palsy, and epilepsy, and she recently underwent seven brain surgeries including a right lobe hemispherectomy to help with seizures and motor function. Despite her long, tough journey, Emme continues to conquer every challenge that comes her way. She has found comfort in the music therapy program, where loves singing the Beluga song with her music therapist.

Donations to Children’s Miracle Network Hospitals fund the music therapy program that offers Emme comfort throughout her medical journey.

Elle was born prematurely at 25 weeks gestation, with a brain bleed that caused hydrocephalus, a neurological disorder caused by an abnormal buildup of cerebrospinal fluid in the cavities of her brain. Elle and her twin sister, Emme, were both given a 10-15% chance of survival. Elle spent 106 days in the neonatal intensive care unit (NICU) with her sister. Elle benefited from the power of play by working closely with Child Life specialists and she loved the special NICU teddy bears, the mobiles, and the play pads. Today, Elle loves dancing, playing, and being her sister Emme’s number one supporter.

Donations to Children’s Miracle Network Hospitals supported Elle and her family by generously covering the treatment not covered by insurance.

Treated at Gillette Children's Specialty Healthcare in St. Paul, MN.

Twelve-year-old ZaLayaa has experienced a variety of sensory and complex medical conditions since she was an infant. Her symptoms have impacted her daily life, and to this day, their underlying cause remains a mystery. Over the years, her family has actively sought answers from doctors, heard different theories, and tried numerous treatments. Once they made it to Gillette Children’s Specialty Healthcare, her mom says “that made a world of difference.” Gillette’s medical team brought a new approach to ZaLayaa’s care. Rather than focusing on solving the puzzle of her diagnosis, her care team addresses the real-life issues ZaLayaa was facing every day. Now, she sees more than 25 different providers at Gillette, receiving comprehensive evaluations with pediatric medicine and rehabilitation specialists, along with numerous physical and occupational therapy appointments. Gillette’s therapeutic recreation specialists have allowed her to enjoy an accessible playground and an adaptive bicycle. She has been waterskiing, run from third base to home plate at a Minnesota Twins game, and impressed fellow golfers with her swing on the course.

The support of Children’s Miracle Network Hospitals has allowed ZaLayaa to reach new milestones on her health journey with innovative complex care teams and Therapeutic Recreation.