33^rd Annual Miracle Tournament and Celebration Dinner

Treated at OHSU Doernbecher Children's Hospital in Portland, OR.

Ages 12 & 10

Madison (Maddie) has only known life with cystic fibrosis. A few days after she was born, she was transferred to OHSU Doernbecher Children’s Hospital for a bowel obstruction. After undergoing the procedure, she stayed in the neonatal intensive care unit (NICU) for 30 days. Two years later, Maddie’s little brother, Max, was also diagnosed with a bowel obstruction. His parents knew to go to the NICU at Doernbecher where his sister received care. Max’s severe bowel obstruction and jejunoileal atresia led to his diagnosis of cystic fibrosis too. As Maddie grew up, her condition began affecting her liver, and when she was 10, she was diagnosed with CF-associated liver disease. While their parents wouldn’t wish the diagnosis on either of their children, they see how Maddie and Max support each other on their shared health journeys. Maddie, now 12, loves art, playing golf and wants to be a veterinarian. 10-year-old Max is an all-star baseball player and his favorite position is shortstop. Maddie and Max continue to lean on one another as they manage their condition and are each other’s biggest cheerleaders.

Thanks to the support of Children’s Miracle Network Hospitals, Maddie and Max received quality care during their stay in the NICU at OHSU Doernbecher Children’s Hospital.

Treated at Penn State Health Children's Hospital in Lancaster, PA.

When Benjamin was born a month early, medical staff realized immediately that he wasn’t crying or breathing correctly. “Everything that could be wrong with his lungs seemed to be wrong,” said Ben's mom, Danielle. He was transported by a pediatric ambulance that was funded by Children's Miracle Network Hospitals to Penn State Health Children’s Hospital, which had the highest level NICU and a high-oscillating ventilator that could save his life. Because Benjamin’s condition was so critical, a doctor explained that he may need a form of life-support called ECMO, a machine that was also purchased by Children’s Miracle Network Hospitals. “I remember signing the consent for the ECMO and asking the doctor if we have to go to ECMO, and that doesn’t work, is there anything beyond that? And she said no. Knowing that we were at that point was very scary,” shared Danielle. “But he’s a strong guy. He rallied and did so well.” A few weeks later, Benjamin was able to go home, and today is a happy, healthy kid! Benjamin loves baseball, soccer and Cub Scouts. He loves trains, bridges, and building things with Legos. He also loves the Pittsburgh Steelers and got to go to Pittsburgh to attend his first game!

Thanks to donations to Children’s Miracle Network Hospitals, Benjamin received life-saving care with the use of a pediatric ambulance and ECMO machine, allowing him to live a healthy life.

Treated at UCSF Benioff Children's Hospitals in Oakland, CA.

Ripley was born with a congenital heart defect and spent the first week of his life in UCSF Benioff Children's Hospitals’ Intensive Care Nursery. A month later, he returned for open heart surgery to repair the defect, known as Tetralogy of Fallot, which reduces the heart’s ability to pump oxygenated blood to the body. He is part of a Cardiac MRI study at UCSF that is exploring the risks of brain injury in babies with congenital heart disease.

Thanks to donations to Children’s Miracle Network Hospitals, Ripley received access to critical care to correct his heart defect.