33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Texas Children's Hospital in Houston, TX.

Kylea was born prematurely at 34 weeks in Kansas, and she tested positive for cystic fibrosis (CF). Her medical team thought it was a false positive since she had no symptoms. Months later, Kylea was still under five pounds. Her mom took her to the emergency center at a nearby children’s hospital in Missouri, where Kylea was admitted for jaundice. After a liver biopsy and other tests, including blood tests to look for the genetic mutations that cause CF, the family got confirmation: Kylea had two copies of delta F508, the most common genetic mutation that causes cystic fibrosis. Once she had an official diagnosis, Kylea’s family turned to Texas Children’s Hospital since they were ranked number one in pulmonology and offered a holistic approach to care. Her family moved to Houston, just in time for the new school year. Her childhood was filled to the brim with sports, dance, gymnastics, Girl Scouts, swimming, science camp, and trips to the zoo.

Today, she is 15 and studying French. She hopes to travel the world and study forensic psychology in college.

Thanks to donations to Children’s Miracle Network Hospitals, Kylea had access to world-class, holistic pulmonology care for cystic fibrosis.

Treated at Children's Hospital Los Angeles in Los Angeles, CA.

Melody was born with a rare congenital condition where string-like bands of tissue wrap around fingers and toes. Amniotic band syndrome is non-preventable and affects one in 15,000 births annually. Melody faced her condition with grace and her family was referred to Children’s Hospital Los Angeles, where she has received comprehensive support. To date, Melody has had four surgical procedures to separate her fingers and remove excess skin to improve her hands’ functionality. Today, Melody proudly tells people about her unique hands. She loves doing art and celebrates her uniqueness.

Thanks to support from Children’s Miracle Network Hospitals, Melody has received access to donor-funded programs, providing a lifeline of support for the areas of greatest need in children’s health care.

Treated at Ann & Robert H. Lurie Children's Hospital of Chicago in Chicago, IL.

When Aidan was seven years old, his parents began to worry as they noticed changes in his energy levels, and regular activities like family bike rides became more and more tiring for him. At his annual doctor’s appointment, his doctor noted that he had grown just one inch in the last year, and after running some tests, his parents turned to Ann & Robert H. Lurie Children’s Hospital of Chicago. Aidan was diagnosed with polycystic kidney disease. Aidan and his parents met with members of the pediatric nephrology team, who helped Aidan understand his condition in an age-appropriate way and included him in conversations at each appointment. Aidan’s condition progressed quickly, and five months later, Aidan went on the transplant list. After confirming that she was a match, his mom made the selfless decision to donate one of her kidneys to Aidan, and they underwent surgery four months later. Through this process, Aidan found comfort through the Lurie Children’s PeerWISE program, which connects current patients with patients who were once in their shoes. Since his kidney transplant, Aidan has continued growing and meeting his milestones. He enjoys playing golf and video games and loves reading and recommending books to his family members.

Thanks to donations to Children’s Miracle Network Hospitals, Aidan received a lifesaving kidney transplant from Ann & Robert H. Lurie Children’s Hospital of Chicago.