33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Gillette Children's Specialty Healthcare in St. Paul, MN.

Twelve-year-old ZaLayaa has experienced a variety of sensory and complex medical conditions since she was an infant. Her symptoms have impacted her daily life, and to this day, their underlying cause remains a mystery. Over the years, her family has actively sought answers from doctors, heard different theories, and tried numerous treatments. Once they made it to Gillette Children’s Specialty Healthcare, her mom says “that made a world of difference.” Gillette’s medical team brought a new approach to ZaLayaa’s care. Rather than focusing on solving the puzzle of her diagnosis, her care team addresses the real-life issues ZaLayaa was facing every day. Now, she sees more than 25 different providers at Gillette, receiving comprehensive evaluations with pediatric medicine and rehabilitation specialists, along with numerous physical and occupational therapy appointments. Gillette’s therapeutic recreation specialists have allowed her to enjoy an accessible playground and an adaptive bicycle. She has been waterskiing, run from third base to home plate at a Minnesota Twins game, and impressed fellow golfers with her swing on the course.

The support of Children’s Miracle Network Hospitals has allowed ZaLayaa to reach new milestones on her health journey with innovative complex care teams and Therapeutic Recreation.

Treated at Penn State Health Children's Hospital in Lancaster, PA.

When Benjamin was born a month early, medical staff realized immediately that he wasn’t crying or breathing correctly. “Everything that could be wrong with his lungs seemed to be wrong,” said Ben's mom, Danielle. He was transported by a pediatric ambulance that was funded by Children's Miracle Network Hospitals to Penn State Health Children’s Hospital, which had the highest level NICU and a high-oscillating ventilator that could save his life. Because Benjamin’s condition was so critical, a doctor explained that he may need a form of life-support called ECMO, a machine that was also purchased by Children’s Miracle Network Hospitals. “I remember signing the consent for the ECMO and asking the doctor if we have to go to ECMO, and that doesn’t work, is there anything beyond that? And she said no. Knowing that we were at that point was very scary,” shared Danielle. “But he’s a strong guy. He rallied and did so well.” A few weeks later, Benjamin was able to go home, and today is a happy, healthy kid! Benjamin loves baseball, soccer and Cub Scouts. He loves trains, bridges, and building things with Legos. He also loves the Pittsburgh Steelers and got to go to Pittsburgh to attend his first game!

Thanks to donations to Children’s Miracle Network Hospitals, Benjamin received life-saving care with the use of a pediatric ambulance and ECMO machine, allowing him to live a healthy life.

Treated at Baylor Scott & White McLane Children's Medical Center in Waco, TX.

Identical twins Audrey and Ella were born nine weeks premature, and each weighed two pounds. They spent several weeks in the neonatal intensive care unit at Baylor Scott & White McLane Children’s Hospital. Despite their early arrival, the twins were healthy, and their early interventions were very minimal. However, when they were one year old, a routine doctor’s visit led to a referral to a plastic surgeon at McLane’s Children’s Hospital who found both of their skulls were developing in a triangular shape. This condition, Metopic Craniosynostosis, happens when the bone plates that make up the skull fuse too early and can lead to vision, learning and behavioral issues. Audrey and Ella required a Cranial Vault reconstruction/reconstructive surgery at 17 months old. After their ten-hour procedure, the doctors confirmed that they did not need any additional surgery. Today, the twins are six-years old and are growing and thriving. With their scars hidden beneath their hairline, you would never know of their condition.

Donations to Children’s Miracle Network Hospitals helped to purchase the equipment used for Audrey and Ella’s Craniosynostosis Cranial Vault reconstruction/reconstructive surgery.