33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Children's Health Foundation in Oklahoma City, OK.

At a routine 18-week ultrasound, Connor was diagnosed with the most severe form of spina bifida and hydrocephalus. His family met with the neurosurgery team at Oklahoma Children’s Hospital in Oklahoma City to learn how to prepare for Connor’s care after birth. He was born at 36 weeks and was immediately taken to the neonatal intensive care unit (NICU), where he stayed for 10 days. His first surgery was at two days old to close the hole in his back to protect his exposed spinal cord. Then, three days later he had brain surgery to place a shunt to drain the fluid in his brain (hydrocephalus). Just before he turned two, he began having long, life-threatening seizures. The seizures have caused Connor to have speech and cognitive delays. Connor receives occupational, physical and speech therapies to help with his development. Over the last 12 years, Connor has had 26 surgeries. Connor has paralysis in his lower half and has required multiple orthopedic surgeries in the last few years to correct his scoliosis, hip dysplasia, and some broken bones caused by low bone density. He loves watching sports, swimming, and watching his big sister dance. He enjoys playing adaptive baseball and attending Wheelie Club, an all-abilities club of varying activities.

Donations to Children’s Miracle Network Hospitals helped Connor receive life-saving care in the NICU and through his numerous surgeries.

Treated at Carilion Children's in Roanoke, VA.

Ten-year-old Meg has a rare genetic condition called CTBP, and scoliosis. At the age of nine, Meg had a full spinal fusion once her curve hit 101 degrees, a surgery that saved her life. Thanks to her care team at Carilion Children’s, Meg has access to all the therapies, doctors, and equipment she needs close to home. Meg loves babies, puppies, her American Girl Dolls, and playing with her big sisters!

Thanks to donations to Children’s Miracle Network Hospitals, Meg has access to world-class doctors and surgeons treating her genetic condition and scoliosis at Carilion Children’s Hospital.

Treated at Seattle Children's Hospital in Seattle, WA.

Aisley’s parents took their 3-year-old daughter to her pediatrician when she began experiencing frequent headaches and vomiting, was especially tired and was eating less than usual. Aisley’s pediatrician referred her to Seattle Children’s, where an MRI revealed a life-threatening tumor that was pushing her brain to one side. She needed to go to the intensive care unit immediately, and then undergo emergency brain surgery. Aisley’s parents were stunned. Three days later, Aisley had a six-hour surgery to remove and biopsy her tumor. To pinpoint her exact diagnosis, pathologists used molecular testing - a type of precision medicine testing that was launched just a few years prior. The results showed Aisley had a rare and aggressive brain cancer. Her treatment included six months of chemotherapy, then six weeks of radiation to remove any remaining cancer cells. Her radiation oncology team significantly reduced the risk of damage to Aisley’s brain by using proton therapy to protect areas critical for language, memory and learning. Aisley completed her treatment one year later and continues to have MRI scans every six months – she remains cancer-free today. Thanks to generous donors to the Uncompensated Care Fund, the ongoing costs of the hearing aids Aisley needs are covered. Today, Aisley is an active 7-year-old on a competitive dance team. She loves doing cartwheels, swimming and playing with her sister, Elin.

Thanks to donations to Children’s Miracle Network Hospitals, Aisley had access to innovative cancer care at Seattle Children’s on her way to remission.