33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Dayton Children’s Hospital in Dayton, OH.

At the age of three, Carah was diagnosed with childhood-onset fluency disorder (also known as stuttering). While most children outgrow a stutter by the age of 5, Carah did not. In 6th grade, a substitute teacher mocked her in class, leaving Carah spiraling with her self-esteem and confidence plummeting. She mentally and emotionally struggled and didn’t want to go to school. Carah saw countless speech therapists over the years but never felt there was a right fit as the focus was placed on her speech fluency and less on the deep, lingering emotional trauma she was experiencing. That changed when Carah turned to Dayton Children’s Speech Therapy Program. “...from the time we walked through those speech therapy doors, they took the time to actually talk with Carah and dug deeper to the parts that people can’t see. And helped Carah in learning tools and techniques to navigate those feelings and mental roadblocks,” her mom said. Carah will always have a stutter; however, she’s learned that her condition does not steal the power of her own voice. One way she’s doing that is by educating her former middle school by giving a keynote speech every year, now part of her school’s curriculum, about stuttering, understanding yourself and your feelings, and bullying. “Stuttering is a part of me, but it doesn’t define me. I have a lot of goals set for the future and I’m just getting started,” Carah said.

Thanks to donations to Children’s Miracle Network Hospitals, Carah received life-changing support from Dayton Children’s Speech Therapy Program, helping her self-esteem grow as she navigates Child Onset Fluency Disorder.

Treated at Nicklaus Children's Hospital in Miami, FL.

After a seemingly healthy pregnancy, Jaxon’s parents were told not to worry by medical providers by a few early signals that something seemed off. Thankfully, his uncle noticed the ridge along Jaxon’s forehead and did not believe the triangular shape of Jaxon’s head was caused by the trauma of delivery. At two weeks old, a CAT scan confirmed Jaxon’s metopic craniosynostosis, where the soft spot at the top of his head had been prematurely fused together in the womb. Jaxon’s parents took him to the renowned Nicklaus Children’s Hospital Brain Institute. At seven months old, Jaxon underwent an eight-hour cranial procedure at Nicklaus Children’s. Despite the challenges, he was in good hands, even combatting other anomalies such as the misalignment of the eyes, a hole in his heart, a horseshoe-shaped kidney, and more. Given the range of birth defects their son faced, Jaxon’s parents’ genetics testing at Nicklaus Children’s confirmed that he had a rare gene mutation in CDK13. There wasn’t much known about CDK13 at the time. Today, nearly 300 cases have been identified globally. For now, Jaxon’s parents treat each symptom as it arises. He struggles with tasks requiring the use of his hands and motor skills, and his ADHD and moderate autism made everyday life and academic tasks challenging. And yet, he continues to make remarkable progress in physical therapy, occupational therapy, and speech therapy. Jaxon’s resilience and carefree, fun personality positively inspires all the lives he touches.

Donations to Children’s Miracle Network Hospitals support the clinical institutes and personalized care that allow Jaxon to make remarkable progress on his journey.

Treated at Children's Health Foundation in Oklahoma City, OK.

At a routine 18-week ultrasound, Connor was diagnosed with the most severe form of spina bifida and hydrocephalus. His family met with the neurosurgery team at Oklahoma Children’s Hospital in Oklahoma City to learn how to prepare for Connor’s care after birth. He was born at 36 weeks and was immediately taken to the neonatal intensive care unit (NICU), where he stayed for 10 days. His first surgery was at two days old to close the hole in his back to protect his exposed spinal cord. Then, three days later he had brain surgery to place a shunt to drain the fluid in his brain (hydrocephalus). Just before he turned two, he began having long, life-threatening seizures. The seizures have caused Connor to have speech and cognitive delays. Connor receives occupational, physical and speech therapies to help with his development. Over the last 12 years, Connor has had 26 surgeries. Connor has paralysis in his lower half and has required multiple orthopedic surgeries in the last few years to correct his scoliosis, hip dysplasia, and some broken bones caused by low bone density. He loves watching sports, swimming, and watching his big sister dance. He enjoys playing adaptive baseball and attending Wheelie Club, an all-abilities club of varying activities.

Donations to Children’s Miracle Network Hospitals helped Connor receive life-saving care in the NICU and through his numerous surgeries.