Treated at Ann & Robert H. Lurie Children's Hospital of Chicago in Chicago, IL.
In October 2014, 3-year-old Charlie experienced a stroke and was rushed to Lurie Children’s Hospital for extensive testing. He was diagnosed with the rare, progressive, life-threatening cerebrovascular condition called Moyamoya Disease. After diagnosis, he underwent successful surgeries on both sides of his brain to restore blood flow to the affected areas.
Charlie was doing well until two years later, when he began suffering from severe headaches, and his family once again found themselves in Lurie Children’s Emergency Department. After placing Charlie on medicine that helps ease the headaches without side effects, recent tests indicated no progression of the disease. Charlie’s new arteries are delivering adequate blood flow, and he shows no signs of new strokes. Specialists at Lurie Children’s world-class Neurovascular Disease and Stroke Program collaborate on his care, ensuring his healthy and unlimited future.
Charlie is now a thriving 13-year-old with indomitable curiosity and love for life. A movie director and avid LEGO builder, he enjoys bike rides (especially for ice cream!), traveling, golf, dogs, reading, exploring nature, and going on new adventures with his family. Fittingly, his favorite song is Elton John "Im Still Standing."