Treated at Valley Children's Hospital in Madera, CA.
Davey Jean was born with a rare genetic disorder called 22q11.2 deletion syndrome (22q) and was faced with many 22q-related anomalies including congenital heart defects, cleft palate, developmental and speech delays, etc. At 30 weeks in utero, she was diagnosed with Tetralogy of Fallot, a compilation of four heart defects, and required open-heart surgery soon after her birth. By the time she was three years old, she was still non-verbal and used American Sign Language to communicate. Her parents learned that she had conductive hearing loss and would need ear surgery to help drain the fluid causing it. Davey Jean also went through two complex surgeries for her Atypical Submucosal Cleft Palate, which made it nearly impossible for her to form sounds and words. The ear, nose, and throat (ENT) department at Valley Children’s, along with the plastic surgery, audiology and speech therapy teams, all joined in an effort to help with Davey Jean’s hearing issues and speech delays. Today, she is able to communicate using words. Now ten years old, Davey Jean has already undergone five surgeries at Valley Children’s. She continues to see multiple specialists at Valley Children’s, as well as physical and occupational therapy. She is very active and enjoys playing with her friends and doing gymnastics. She loves going to the park and playing with her toys and her dog, Tater Tot.
Thanks to support from Children’s Miracle Network Hospitals, Davey Jean has been able to get the surgeries and critical care she needed.