33^rd Annual Miracle Tournament and Celebration Dinner

Treated at UCSF Benioff Children's Hospitals in Oakland, CA.

Ripley was born with a congenital heart defect and spent the first week of his life in UCSF Benioff Children's Hospitals’ Intensive Care Nursery. A month later, he returned for open heart surgery to repair the defect, known as Tetralogy of Fallot, which reduces the heart’s ability to pump oxygenated blood to the body. He is part of a Cardiac MRI study at UCSF that is exploring the risks of brain injury in babies with congenital heart disease.

Thanks to donations to Children’s Miracle Network Hospitals, Ripley received access to critical care to correct his heart defect.

Treated at Valley Children's Hospital in Madera, CA.

Davey Jean was born with a rare genetic disorder called 22q11.2 deletion syndrome (22q) and was faced with many 22q-related anomalies including congenital heart defects, cleft palate, developmental and speech delays, etc. At 30 weeks in utero, she was diagnosed with Tetralogy of Fallot, a compilation of four heart defects, and required open-heart surgery soon after her birth. By the time she was three years old, she was still non-verbal and used American Sign Language to communicate. Her parents learned that she had conductive hearing loss and would need ear surgery to help drain the fluid causing it. Davey Jean also went through two complex surgeries for her Atypical Submucosal Cleft Palate, which made it nearly impossible for her to form sounds and words. The ear, nose, and throat (ENT) department at Valley Children’s, along with the plastic surgery, audiology and speech therapy teams, all joined in an effort to help with Davey Jean’s hearing issues and speech delays. Today, she is able to communicate using words. Now ten years old, Davey Jean has already undergone five surgeries at Valley Children’s. She continues to see multiple specialists at Valley Children’s, as well as physical and occupational therapy. She is very active and enjoys playing with her friends and doing gymnastics. She loves going to the park and playing with her toys and her dog, Tater Tot.

Thanks to support from Children’s Miracle Network Hospitals, Davey Jean has been able to get the surgeries and critical care she needed.

Treated at University of Michigan Health at Sparrow Children's Center in Lansing, MI.

At 17 weeks pregnant, Ryan’s mom, Becky, was diagnosed with a subchorionic hematoma. Soon after, Becky was placed on bedrest for 6 weeks until Ryan was born via an emergency C-section at 23 weeks.

Ryan weighed one pound seven ounces at birth. In the University of Michigan Health at Sparrow Children’s Center’s Regional Neonatal Intensive Care Unit (RNICU), he was supported by a team of neonatologists, nurse practitioners, nurses, respiratory therapists, phlebotomists, and many others. Ryan’s time in the NICU was marked by underdeveloped lungs and bronchopulmonary dysplasia, multiple infections, intraventricular hemorrhages, necrotizing enterocolitis, and advanced retinopathy of prematurity.

After discharge, Ryan required regular follow-up appointments with many subspecialists, therapists, medical equipment providers, and others. He was readmitted that first year into the pediatric intensive care unit for breathing difficulties, and additional surgery.

Today, Ryan is a 14-year-old who exemplifies perseverance. He loves to build things, ride his bike and hoverboard, and play in the band!

Thanks to donations to Children’s Miracle Network Hospitals, Ryan had access to a team of lifesaving specialists in the neonatal intensive care unit after being 17 weeks prematurely.