33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Hasbro Children's Hospital in Providence, RI/New Bedford, MA.

At 18 weeks gestation, London’s parents wanted to find out their baby’s gender. A high-level ultrasound soon confirmed that their baby was a girl--and that she would be born with spina bifida. Her parents did everything they could to learn about the diagnosis in preparation. Dr. Petra Klinge, a neurosurgeon at Hasbro Children’s Hospital, not only reassured them, but she also gave them hope. The day after London was born, Dr. Klinge performed an intricate eight-hour surgery to close the skin and spinal cord on the tiny newborn’s spine. When London was still not walking at 18 months, early intervention specialists advised her parents to consider leg braces and a walker, but instead they turned to Hasbro’s Pediatric Rehabilitation team and continued physical therapy. Just after turning two years old, London got up and walked across the room for the first time on her own. Now nine years old, London loves to dance and play soccer, and she is training for a Black Belt. She continues to amaze everyone with her vibrant smile and personality.

Donations to Children’s Miracle Network Hospitals helped London get the support of her local pediatric rehabilitation program.

Treated at Ann & Robert H. Lurie Children's Hospital of Chicago in Chicago, IL.

When Aidan was seven years old, his parents began to worry as they noticed changes in his energy levels, and regular activities like family bike rides became more and more tiring for him. At his annual doctor’s appointment, his doctor noted that he had grown just one inch in the last year, and after running some tests, his parents turned to Ann & Robert H. Lurie Children’s Hospital of Chicago. Aidan was diagnosed with polycystic kidney disease. Aidan and his parents met with members of the pediatric nephrology team, who helped Aidan understand his condition in an age-appropriate way and included him in conversations at each appointment. Aidan’s condition progressed quickly, and five months later, Aidan went on the transplant list. After confirming that she was a match, his mom made the selfless decision to donate one of her kidneys to Aidan, and they underwent surgery four months later. Through this process, Aidan found comfort through the Lurie Children’s PeerWISE program, which connects current patients with patients who were once in their shoes. Since his kidney transplant, Aidan has continued growing and meeting his milestones. He enjoys playing golf and video games and loves reading and recommending books to his family members.

Thanks to donations to Children’s Miracle Network Hospitals, Aidan received a lifesaving kidney transplant from Ann & Robert H. Lurie Children’s Hospital of Chicago.

Treated at Bernard & Millie Duker Children's Hospital at Albany Medical Center in Albany, NY.

During Joseph’s newborn screening, a blood test flagged a rate metabolic genetic disorder, called galactosemia. Galactosemia prevents the body from breaking down the sugar galactose, causing it to build up in the blood and wreak havoc on organs. While waiting for further test results, Joseph was admitted to the emergency room with a fever, and at that point had become septic, which eventually resulted in meningitis. Doctors prescribed him strong antibiotics, which was lifesaving, but unfortunately caused unilateral hearing loss.

Because of galactosemia, Joseph must adhere to a strict diet. There currently is no treatment or cure for galactosemia, only dietary restrictions. His family has become creative chefs, finding new recipes and workarounds to meet Joseph’s dietary needs.

Today, Joseph is 12 years old. He enjoys soccer, swimming, riding his bike, and playing fortnight. Last year, Joseph obtained his black belt in taekwondo.

Donations to Children’s Miracle Network Hospitals help patients and families like Joseph’s receive ongoing, specialized care.