Treated at OHSU Doernbecher Children's Hospital in Portland, OR.
Ages 12 & 10
Madison (Maddie) has only known life with cystic fibrosis. A few days after she was born, she was transferred to OHSU Doernbecher Children’s Hospital for a bowel obstruction. After undergoing the procedure, she stayed in the neonatal intensive care unit (NICU) for 30 days. Two years later, Maddie’s little brother, Max, was also diagnosed with a bowel obstruction. His parents knew to go to the NICU at Doernbecher where his sister received care. Max’s severe bowel obstruction and jejunoileal atresia led to his diagnosis of cystic fibrosis too. As Maddie grew up, her condition began affecting her liver, and when she was 10, she was diagnosed with CF-associated liver disease. While their parents wouldn’t wish the diagnosis on either of their children, they see how Maddie and Max support each other on their shared health journeys. Maddie, now 12, loves art, playing golf and wants to be a veterinarian. 10-year-old Max is an all-star baseball player and his favorite position is shortstop. Maddie and Max continue to lean on one another as they manage their condition and are each other’s biggest cheerleaders.
Thanks to the support of Children’s Miracle Network Hospitals, Maddie and Max received quality care during their stay in the NICU at OHSU Doernbecher Children’s Hospital.