33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Texas Children's Hospital in Houston, TX.

Kylea was born prematurely at 34 weeks in Kansas, and she tested positive for cystic fibrosis (CF). Her medical team thought it was a false positive since she had no symptoms. Months later, Kylea was still under five pounds. Her mom took her to the emergency center at a nearby children’s hospital in Missouri, where Kylea was admitted for jaundice. After a liver biopsy and other tests, including blood tests to look for the genetic mutations that cause CF, the family got confirmation: Kylea had two copies of delta F508, the most common genetic mutation that causes cystic fibrosis. Once she had an official diagnosis, Kylea’s family turned to Texas Children’s Hospital since they were ranked number one in pulmonology and offered a holistic approach to care. Her family moved to Houston, just in time for the new school year. Her childhood was filled to the brim with sports, dance, gymnastics, Girl Scouts, swimming, science camp, and trips to the zoo.

Today, she is 15 and studying French. She hopes to travel the world and study forensic psychology in college.

Thanks to donations to Children’s Miracle Network Hospitals, Kylea had access to world-class, holistic pulmonology care for cystic fibrosis.

Treated at Nationwide Children’s Hospital in Toledo, OH.

Two weeks before Myla’s sixth birthday she was diagnosed with acute lymphoblastic leukemia. Myla’s diagnoses came during the COVID-19 pandemic, therefore, Myla’s dad had to wait out in the van while they remained in the emergency room. It was through a video call that he heard the words “your child has cancer.” Myla initially spent ten days in the hospital where she had surgery to have her port placed, receive her first few rounds of chemotherapy, and many blood transfusions. After her release from the hospital, Myla began experiencing severe neuropathy. She had difficulty walking, using her hands, and her vocal cords were becoming paralyzed. Myla tested positive for Charcot-Marie-Tooth disease (CMT). Two weeks later, she was sent home with many mobility and occupational therapy devices to help her regain her independence.

Today, Myla is nine and has returned to things she loved to do before her diagnosis- like riding a bike, doing ballet, and going to school. Myla keeps a smile on her face and takes things one day at a time!

Thanks to donations to Children’s Miracle Network Hospitals, Myla had access to the therapies, specialists, and equipment that helped her overcome leukemia and get back to all her favorite activities.

Treated at Seattle Children's Hospital in Seattle, WA.

Aisley’s parents took their 3-year-old daughter to her pediatrician when she began experiencing frequent headaches and vomiting, was especially tired and was eating less than usual. Aisley’s pediatrician referred her to Seattle Children’s, where an MRI revealed a life-threatening tumor that was pushing her brain to one side. She needed to go to the intensive care unit immediately, and then undergo emergency brain surgery. Aisley’s parents were stunned. Three days later, Aisley had a six-hour surgery to remove and biopsy her tumor. To pinpoint her exact diagnosis, pathologists used molecular testing - a type of precision medicine testing that was launched just a few years prior. The results showed Aisley had a rare and aggressive brain cancer. Her treatment included six months of chemotherapy, then six weeks of radiation to remove any remaining cancer cells. Her radiation oncology team significantly reduced the risk of damage to Aisley’s brain by using proton therapy to protect areas critical for language, memory and learning. Aisley completed her treatment one year later and continues to have MRI scans every six months – she remains cancer-free today. Thanks to generous donors to the Uncompensated Care Fund, the ongoing costs of the hearing aids Aisley needs are covered. Today, Aisley is an active 7-year-old on a competitive dance team. She loves doing cartwheels, swimming and playing with her sister, Elin.

Thanks to donations to Children’s Miracle Network Hospitals, Aisley had access to innovative cancer care at Seattle Children’s on her way to remission.