33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Bernard & Millie Duker Children's Hospital at Albany Medical Center in Albany, NY.

During Joseph’s newborn screening, a blood test flagged a rate metabolic genetic disorder, called galactosemia. Galactosemia prevents the body from breaking down the sugar galactose, causing it to build up in the blood and wreak havoc on organs. While waiting for further test results, Joseph was admitted to the emergency room with a fever, and at that point had become septic, which eventually resulted in meningitis. Doctors prescribed him strong antibiotics, which was lifesaving, but unfortunately caused unilateral hearing loss.

Because of galactosemia, Joseph must adhere to a strict diet. There currently is no treatment or cure for galactosemia, only dietary restrictions. His family has become creative chefs, finding new recipes and workarounds to meet Joseph’s dietary needs.

Today, Joseph is 12 years old. He enjoys soccer, swimming, riding his bike, and playing fortnight. Last year, Joseph obtained his black belt in taekwondo.

Donations to Children’s Miracle Network Hospitals help patients and families like Joseph’s receive ongoing, specialized care.

Treated at Texas Children's Hospital in Houston, TX.

Kylea was born prematurely at 34 weeks in Kansas, and she tested positive for cystic fibrosis (CF). Her medical team thought it was a false positive since she had no symptoms. Months later, Kylea was still under five pounds. Her mom took her to the emergency center at a nearby children’s hospital in Missouri, where Kylea was admitted for jaundice. After a liver biopsy and other tests, including blood tests to look for the genetic mutations that cause CF, the family got confirmation: Kylea had two copies of delta F508, the most common genetic mutation that causes cystic fibrosis. Once she had an official diagnosis, Kylea’s family turned to Texas Children’s Hospital since they were ranked number one in pulmonology and offered a holistic approach to care. Her family moved to Houston, just in time for the new school year. Her childhood was filled to the brim with sports, dance, gymnastics, Girl Scouts, swimming, science camp, and trips to the zoo.

Today, she is 15 and studying French. She hopes to travel the world and study forensic psychology in college.

Thanks to donations to Children’s Miracle Network Hospitals, Kylea had access to world-class, holistic pulmonology care for cystic fibrosis.

Treated at Johns Hopkins Children's Center in Baltimore, MD.

Before Emerson (Emme) was born at 25 weeks, she and her twin sister, Elle, were given a 10-15% chance of survival. At Johns Hopkins Children’s Center, Emme had her first brain surgery at 21 days old. She was diagnosed with hydrocephalus, cerebral palsy, and epilepsy, and she recently underwent seven brain surgeries including a right lobe hemispherectomy to help with seizures and motor function. Despite her long, tough journey, Emme continues to conquer every challenge that comes her way. She has found comfort in the music therapy program, where loves singing the Beluga song with her music therapist.

Donations to Children’s Miracle Network Hospitals fund the music therapy program that offers Emme comfort throughout her medical journey.

Elle was born prematurely at 25 weeks gestation, with a brain bleed that caused hydrocephalus, a neurological disorder caused by an abnormal buildup of cerebrospinal fluid in the cavities of her brain. Elle and her twin sister, Emme, were both given a 10-15% chance of survival. Elle spent 106 days in the neonatal intensive care unit (NICU) with her sister. Elle benefited from the power of play by working closely with Child Life specialists and she loved the special NICU teddy bears, the mobiles, and the play pads. Today, Elle loves dancing, playing, and being her sister Emme’s number one supporter.

Donations to Children’s Miracle Network Hospitals supported Elle and her family by generously covering the treatment not covered by insurance.